But also here the same applies: an occasional juice makes no difference, but a routine does. Just to give you a bettter picture: I take about 4 times a year an ”emergency ”afternoon nap haha. Thalassemia Minor Patients usually have food and diet like anyone else is having. Zinc and copper Hemoglobin is the substance in your red blood cells that allows them to carry oxygen. This is not a very romantic question. Although Thalassemia is not transmittable betweet people, if you ever decide to have a child with your partner you’ll really need to know whether your significant other also has Thalassemia (even if she/he feels fine). I would discuss with your doctor whether this is suitable for you. Nutritional supplements, in the form of folic acid supplements, and monitoring of B12 levels are important, as these nutrients are key components to making healthy blood cells. A low level of red blood cells 2. Another specialist told me that I can go up a mountain, but not walk for hours/get my heart rate up. You can’t miss what you never had, the doctor said. Water For professional medical information on natural medicines, see Natural Medicines Comprehensive Database Professional Version.© Therapeutic Research Faculty 2018. The fatigue is not a sleepy fatigue, but an overall fatigue. I don’t use this and therefore I can’t say anything about it. I’ll mention all the supplements I know because they crossed my path during my research, but I don’t take all of them. However, especially with Thalassemia, living a healthy life is important. You’ll be amazed by all the things you can do, instead of focusing on what you can’t. I know iron supplements can lead to iron overload in this type of condition. A lot of people suffering from Thalassemia experience weakness of the bones, so you need to eat calcium rich food. Only one of the two β globin alleles contains a mutation, so β chain production is not terribly compromised and patients may be relatively asymptomatic. Mean serum folate and vitamin B12 levels in heterozygote … However, I wanted to know what Thalassemia minor really is and if there is anything I need to take into consideration. A low level of red blood cells 2. This also applies to my diet … When I eat a vegan cake, I make sure to enjoy it and I don’t feel guilty about it. Alpha Thalassemia mainly occurs in families that have their roots in South East Asia, India, China or the Philippines. I vary a lot with the food I eat and I also combine a lot of food (like iron) with a fat or vitamin C for a better absorption. I’m not a doctor or a specialist and I really don’t know everything about Thalasemmia minor. I prefer a seat in the shade with my cold hands haha. The questions I have received so far (just by mentioning Thalassemia on my about page) are mostly about how to get more energy, how to live a healthy life with Thalassemia, what to avoid and how I ”do it” on a plant-based diet. It works well with muscle cramps, but also has many other benefits for the body. Especially because I no longer feel guilty about it. Don’t be too hard on yourself There are people with Thalassemia who lift heavy weights, run a marathon, run 3 successful businesses and raise 4 children. Water contains oxygen and it helps the red blood cells to transport nutrients. Many people feel depressed and incapable when the symptoms are bad. Nobody (and no body) is perfect and everyone is physically different. Tired, dizzy, weakened, and I got every virus that was going around. At the moment I stopped taking high doses of folic acid. Because what works for me, may not work for everyone and I think that every person is unique. After all, I indeed don’t know any better, but if the fatigue is getting worse than I definitely will notice it. I don’t consider myself different or as a person with less energy. that this approach works for everyone and a vegan/vegetarian diet is therefore not a general rule to feel good under this blood condition, but a lot of fresh unprocessed products with lots of vitamins, minerals, enzymes and fibers is what worked for me. This causes less severe anemia. I’m absolutely convinced that diet plays an important role in, However, it can be tempting to not care about nutrition when you have, An overwhelming feeling arises easily where you might think: ”I’ll have this forever so I can’t do much about it.”. CLA1000 will store your food and energy better and will make sure that fat is being converted into energy. Lifelong anemia People with thalassaemia produce either no or too little haemoglobin, which is used by red blood cells to carry oxygen around the body. I’m not limited (and don’t limit myself) in my daily life by Thalassemia minor. Although I have anemia 24/7 only a few times a year I’ll have a so called ”anemic episode” where I’ll feel really drained. I don’t have to stay at home or adjust my life for that anymore though (like I had to in. When I started following a whole food plant-based diet, I luckily noticed a difference. I spray magnesium under my feet and make sure I especially do this when I have difficulties falling asleep. I encourage you to do your own research or try to adjust your diet to a healthier diet and to see what works for you. I never had anemia in my life because of an iron deficiency (or even had such a thing as an iron deficiency) and luckily I have never taken unnecessarily iron supplements ever again. Follow the links to read common uses, side effects, dosage details and read user reviews for the drugs listed below. It is recommended that patients going through blood transfusion should opt for a low iron diet. Because of my water intake I feel more energetic and I’m not short of breath. Misdiagnosed individuals with thalassemia minor may be given iron supplements for anemia, which can have serious consequences. In this situation, doctors prescribe Vitamin B supplement.In thalassemia minor the RBC count is usually higher than 5 × 10 6 /μL (5 × 10 12 /L) and in iron deficiency less than 5 × 10 6 /μL (5 × 10 12 /L). 4. Considering taking a vitamin or supplement to treat Beta-Thalassemia? When I eat a vegan cake, I make sure to enjoy it and I don’t feel guilty about it. I only suffered from this if I was too hard on myself. Alpha Thalassemia mainly occurs in families that have their roots in South East Asia, India, China or the Philippines. I have never ever taken any iron supplements after that because I know that it will not cure Thalassemia (more on that later). I prefer not to pay too much attention to it, because what you don’t focus on can’t get bigger. Taking iron supplements when you already have enough iron in your body could be harmful. Eventhough CLA1000 is a fat it’s known as a diet (weight loss) supplement and I have never tried it or really looked much into it. I allow myself to completely rest (often I’ll only need 30 minutes on the couch) and I’ll feel all fine again. Both alpha and beta thalassemia manifest as thalassemia major and thalassemia minor. Listen to your body. By that I mean that I’ll feel a bit more tired and I’ll look more pale. When I started following a whole food plant-based diet, I luckily noticed a difference. A sugar addiction is also something I’ve struggled with for years. Calcium – milk, yogurt, cheese, white beans. I'm also an avid reader and traveler. Folic acid can help red blood cells develop. In addition, since the diagnosis of Thalassemia as a baby, for decades I have been taking high doses of folic acid (only available per doctor prescription). However, I wanted to know what Thalassemia minor really is and if there is anything I need to take into consideration. As a child, I had much more problems with anemia than now. But I have to admit that we have control over how big we make a problem. This copyrighted material is provided by Natural Medicines Comprehensive Database Consumer Version. This advice never helped me though. Thalassemia major is the most severe form of the disease and can result in failure to grow, fatigue, facial bone deformities and jaundice. Overall this is how I can sum up my symptoms and I don’t know any better. Personally, I never had an iron deficiency and therefore never took iron supplements. β thalassemia intermedia is caused by a β + /β o or β + /β + genotype. If you often feel tired, it’s quite a normal thing that you don’t feel great about yourself. Foods recommended for thalassemia includes folic acid, milk ginger, Vitamin C, zinc, vitamin D, honey, cereals, vitamin E and dairy products. Just like vitamin D it’s not a good idea to take high dosages vitamin E supplements without knowing what your blood values are. I personally don’t like hot temperatures, since it, Doctors are quick to say that all symptoms are normal and that you have to accept it. For more information, please see the. This is based on the U.S. I can agree with this, if the fatigue is not too bad. Iron supplements will not help a person with this type of anemia, unless it causes heavy menstruation. 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